Cystic Fibrosis Canada

Cystic Fibrosis Canada is a national charitable not-for-profit corporation established in 1960, and is one of the world’s top three charitable organizations committed to finding a cure for cystic fibrosis (CF).[2]

Cystic Fibrosis Canada
Founded 15 July 1960 (1960-07-15)
Type Health Charity
Registration no. 10684-5100 RR0001
Location
Area served
Canada
Key people
President, Director-at-Large: Jim Mountai
Patron: Celine Dion
President and CEO: Kelly Grover
Revenue
$16.8 million (2014)[1]
Volunteers
50 chapters
Website cysticfibrosis.ca

Cystic Fibrosis Canada’s mandate is to help individuals with cystic fibrosis, principally by funding cystic fibrosis research and care. The organization also provides educational materials for the cystic fibrosis community and the general public; undertakes advocacy initiatives with, and on behalf of Canadians with cystic fibrosis, and raises funds to supports its programs.

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Cystic Fibrosis Canada raises funds in order to promote public awareness and support research and high-quality cystic fibrosis care.[3]

Cystic Fibrosis Canada’s primary objective is to fund CF research and care: the organization annually funds approximately 50 research projects, in addition to scholars, post-doctoral fellows, and students undertaking CF investigations. Each year, Cystic Fibrosis Canada awards more than $7 million in grants to CF researchers, and approximately $2 million in grants to the 42 CF clinics, and five transplant centres across the country.[4]

To help ensure consistent, high-quality care across the country, Cystic Fibrosis Canada provides support to clinicians through grants, training awards and access to statistical information through the online Canadian Cystic Fibrosis Registry.

Canadian researchers are viewed as leaders in the global effort to find a cure or control for cystic fibrosis.[citation needed] In 1989, Canadian researchers, funded by Cystic Fibrosis Canada, discovered the gene responsible for cystic fibrosis, and they continue to play a leading role in developing new treatments.[5]

As well as general information about cystic fibrosis in Canada and resources for teachers, parents, and health care professionals, Cystic Fibrosis Canada publishes newsletters and reports covering such areas as research and training grants, clinical services and annual data on patients with cystic fibrosis.

Since 1964, Kin Canada, a Canadian service organisation, has supported Cystic Fibrosis Canada, raising over $42 million in support of cystic fibrosis research and care.[6]

  1. “Annual Report 2009: Keeping a Promise”(PDF). Cystic Fibrosis Canada. 2009. Archived from the original(PDF) on 2010-10-26. Retrieved 2010-12-21.
  2. “Cystic Fibrosis Canada”. www.cysticfibrosis.ca. Retrieved 2019-06-09.
  3. “Cystic Fibrosis Canada: About us: What we do: Mission”. Cystic Fibrosis Canada. 2009-08-06. Archived from the original on 2011-07-06. Retrieved 2011-01-31.
  4. “Cystic Fibrosis Canada: Research”. Cystic Fibrosis Canada. 2010-05-19. Archived from the original on 2011-06-23. Retrieved 2011-01-31.
  5. “Cystic Fibrosis Canada: Research: Research Milestones”. CCystic Fibrosis Canada. 2010-08-24. Archived from the original on 2011-01-20. Retrieved 2011-01-31.
  6. “Cystic Fibrosis Canada: About us: Our partners: Kin Canada”. CCystic Fibrosis Canada. 2010-09-21. Archived from the original on 2011-01-06. Retrieved 2011-01-31.

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